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Research Registry

The CLF Research Registry comprises the Brain Donation Registry (BDR) and Clinical Research Registry (CRR). You may sign up for one or both.

BDR members will receive an information packet digitally. CRR members will receive regular communications recruiting them to clinical research studies on concussions and CTE in Canada. The Concussion Legacy Foundation Canada proudly collaborates with the CAMH Brain Health Imaging Centre, led by Dr. Neil Vasdev, the UNITE Brain Bank led by Dr. Ann McKee, and the Global Brain Bank sites in Brazil, Australia, New Zealand, and the United Kingdom.

Disclaimer: Please note that your pledge is not binding. For legal reasons, the final decision to donate will be made by your next of kin. Therefore, we encourage you to discuss your intent to donate with your family. Additionally, due to the natural evolution of research, we cannot guarantee in advance that we will be able to accept your donation. The Brain Donation Coordinator will be able to determine if a donation is possible at the time the donation inquiry is made.

Research Registry

Pledge Information

What are you signing up for? Check at least one box

I pledge to donate my brain to research after my deathI am interested in participating in clinical research while I am alive

Would you like to make your brain pledge public information?

Basic Information

Title

First Name

Middle Name

Last Name

Suffix

Country

Address

City

State/Province

Use abbreviated state name (Ex. New York = NY)

Postal Code

Phone Number

Confirm Email

Date of Birth (MM/DD/YYYY)

Race

Sex

Military Service

Military Branch

Military Status - Pre or Post 9/11?

If your service ENDED before 9/11/2001, select "Pre 9/11"

What college or university do you feel most connected to?

This could be where you attended, graduated, work, or have another connection

If applicable, list a second college or university that you feel most connected to

This could be where you attended, graduated, work, or have another connection

Exposure Information

This section asks about your history of brain trauma exposure. Complete this section to the best of your ability regarding your knowledge of the patient's brain injury history. You do not need to have experienced brain trauma in order to sign up for the Clinical Research Registry or Brain Donation Registry. We encourage you to sign up regardless of your brain trauma history.

Primary Exposure

Other - Primary Exposure

Years of Primary Exposure

If Primary Exposure was a sport, what is the highest level reached of the primary sport you played?

Secondary Exposure

How many concussions would you estimate you have suffered?

Referral Information

How did you hear about us?

If you selected other, how did you hear about us?

If you were referred by a military-related organization(s), which organization(s)? Select all that apply:

If you were referred by a military-related organization not listed here, which organization referred you?

If you were referred to sign up by a friend/family member, who referred you?

Contact Information

Research Registry

Research Registry

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